Noah Coates is 8 years old and was diagnosed with leukodystrophy (Vanishing White Matter) when he was approximately 2 1/2 years old.

Noah is a special little boy who always meets his challenges head on, he has an infectious laugh and like all other little boys loves his superheros, he also loves to play on his X-Box but nothing gives him more pleasure than when he gets the chance to hang out with his chums. Sadly on the 19th October 2010 Noah’s little sister Gracie was also diagnosed with the same disease, Gracie is now over 5 years old and is a beautiful and happy little girl she loves her Disney movies and loves to sing and dance along to the music, Gracie has not been affected at the same rate as Noah has been, however in early 2014 not long after her 4th birthday we started to notice a few early signs of progression from this disease.